Disclaimer.... I wanted you to realize that all the information that I will post regarding The Adult Onset of Osteopetrosis Tarda is just information that I have found or lived through regarding the disease. Some of it has been told to me from doctor's, some of it has been found through the internet and some of it is stuff that I have lived through or figured out myself. I am writing all of this from my perspective as I have lived it, but in speaking with others that have the same disease, I have realized that we all do not have the same symptoms. So pick and choose what you would like to know or learn and realize that it isn't the end all be all, but is just information out there available for you.
My goal is to help, inform and guide people regarding Osteopetrosis Tarda. May it help you understand that you aren't the only one out there with this disease. As few of us as there are, my hope is that we can share and help each other out.
Peace,
Stephanie
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